After Emily was discharged from the hospital she was sad. She couldn't do things she could before she was sick. She was so weak walking was difficult and she couldn't jump or run at all. I was so worried she would hate life.
I remember overhearing someone say they would commit suicide if they got fat and lost their hair due to another similar disease and all I could think about was what if that is how Emily feels.
I am very happy to report she has been her happy self since I got home from my last work trip. She is running, smiling, laughing, jumping and playing like she used to. She might be a little slower and not as strong as before, but she doesn't seem to even notice it any more.
As a parent I decided if I could teach my children to love life I would have done a good job. It's still my hope that in spite of infusions and doctor visits and steroids and arthritis Emily will love life and find joy.
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